Good Stuff

Content note: Child-centered post

Yesterday marked the first day in quite awhile that the weather was fine enough for a good walk outdoors.  The temperature was in the mid-40s, which, given cold this winter, felt downright balmy.  The sun shone and we took a short walk to the park down the street.  E rode her trike and collected rocks.  We came home tired and a little muddy (the trike tipped in a puddle) and it was wonderful to finally get outside again.

The girls will turn two and four shortly.  They’re no longer babies, but instead children who are more interested in running ahead, picking out tiny treasures for their various collections, and reading books.  It is, of course, a little bittersweet – after waiting so long for them, it feels like the days have sped up – but it is also marvelous to watch them grow and change and begin to fill in the contours of their personalities in demonstrable ways.

M waited a long time for words but suddenly now in the last few weeks began speaking in full sentences: “I want more milk.” “Don’t go that way.  Go there.”  “It’s time for snack.”  She’s almost discharged from developmental therapy (for the speech) and knows her own mind well.  Books are her favorites, particularly Paul O. Zelinsky’s gorgeously illustrated Rapunzel, along with almost any book that has flaps to open.

E also is doing well.  Every time I think about the tiny 2lb 8oz (1190 gram) baby in the NICU incubator and stare at this child who is still quite petite in stature but huge in personality, it almost makes me want to cry with happiness.  She’s at age level in most skills except for some gross motor that needs to finish catching up.  Her favorite thing is stickers and making cards for people that she happily scribbles all over and explains to me what she “wrote” there.

Together, as much as I dislike the term itself, the girls are the definition of “frenemies”.  A sample interaction: E yanks a toy away from M, who tries to push E but doesn’t quite manage to do more than brush E’s shoulder.  E flops on the floor and starts sobbing loudly.  M goes over and pats E, making soothing noises.  E yells at M and stomps off.  A few minutes later, both girls are cuddled on the couch with E explaining a book to M, who is listening with great attention.

In other words, they’re siblings.  But I also know how much they genuinely care for one another.  E worries about M, M searches for E when E’s not in sight, and they play together well a surprising amount of the time.

They’re small children and there are days that don’t look nearly this idyllic, but every day, I’m grateful. 

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Not Quite the Original Project, But…

Fun fact: pattern sizes are NOT the same as ready-to-wear sizes.

As a consequence, I am paused on dress-making, mostly because I discovered that I cut the fabric too small. One frantic call to my aunt (amazing fabric arts person) later, and I’m sending most of the project to her to help figure out because she’s pretty sure she can save things by putting in a gusset, but that’s outside of my skill set right now.

Did I mention that aunts are THE BEST?  Because they really are.

Instead, I pulled out some fabric I had bought a couple of years ago and found a free 1/2 circle skirt pattern online.  That looked a bit less intimidating, as it involves two pieces only.

I got working, and by the end of the day, I had a skirt for Older Daughter.  I even knew enough to put interfacing in the waistband (that the tutorial/pattern didn’t mention) to get it to look right and managed to get the invisible zipper in (mostly) invisibly.  The hem is slightly crooked, but I’m pretty pleased with the outcome!

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I figure I increased my skills and followed a pattern correctly.  Next step is making a skirt big enough for me and putting in a lining.  We’ll see how that goes…

 

Odds and Ends

A couple of weeks ago, E knocked my laptop off the coffee table accidentally.  In a freak sort of moment, it hit the corner of a heavy basket I keep next to the table and cracked the screen.  Since the crack didn’t affect the LCD part of the screen (it was a very surface crack), I groaned and figured I’d keep using the laptop for a bit while researching potential replacements and saving.

A few days later, M spit up directly into the keypad.  I turned it off immediately, wiped up what I could, and waited.  The laptop is mostly working now, but has some sticky keys and is clearly running even more obviously on borrowed time than before.  Arthur is researching alternatives and hopefully we’ll get one ordered in the next week or so before this laptop dies entirely.  I’m backing up all my files to the external hard-drive and getting ready to move my bookmarks and such before that happens.

It is telling that upon seeing the screen crack, my first thought was: well, this will most likely be less expensive to replace than two vials of foll.istim and definitely less expensive than a single IUI.

Infertility has clearly skewed my view of the term “expensive”.

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Life is in that busy but largely pleasant mode for the most part these days.  I’ve been back to work since mid-June, which is going well.  I enjoy what I do, so while I’m tired (trying to readjust to working nights is taking some time), it’s great to have a chance to interact with my coworkers and take on some projects.

Arthur and I got to go to a fundraiser for the local zoo on Friday with his parents and a couple of his siblings.  It’s a sort of local “taste and drink” deal, where many of the restaurants and catering companies in town set up booths with small portions and typically a signature drink or two.  Because I have a terrible sweet tooth, my favorite is the artisan chocolate company.  It was a lot of fun, made more so because the animals were far more active at night than they typically are during the day.

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E is almost finished with speech therapy.  We have one last session in September just to make sure she hasn’t regressed.  I’m not too worried at this point.  The other day, she walked up to me and started talking about the “botanical garden”.  Yep, with the word ‘botanical’ clearly pronounced.  We’ve come a long way from the 18 month who had what the speech therapist termed a “moderate to severe” speech delay.

She’s doing extremely well overall.  Still doing some physical therapy for a few motor issues, but we see improvement and hope that soon enough the gymnastics class I’ve got her enrolled in at our local YMCA will be enough.  We’re gearing up for a minor procedure for E in September due to congenital partially blocked tear ducts, but hopefully that will be her final surgery for the foreseeable future.

M is growing so fast!  Having a term baby after a very premature one is a totally different game.  She’s a happy, giggly baby who smiles and babbles a lot.  It’s strange not to be in a doctor’s office on a regular basis and to watch her outgrow clothes at an absolutely (to me) extraordinary rate.

~*~

Arthur and I scheduled a consult with Dr. E to discuss our two remaining embryos.  We aren’t anywhere near ready to make a final decision, but we need information to make some of those decisions, time to potentially save up financially, and a discussion of what’s even possible or advisable at this point.

~*~

We’re starting to make appointments to prepare for a house purchase.  We’ve been looking at various neighborhoods, narrowed what we are looking for, and decided on a couple of financial institutions to talk to for the mortgage.  It’s both daunting and exciting to get to this point.

Bittersweet

When E was about six months old, I organized and decorated her room.  It was, literally, the only room in the house at that time I’d managed to do anything in remotely resembling organization.  The whole project had gotten kicked off with me wailing at Arthur one day about how I “hadn’t even gotten to put together the nursery” before I’d gone into the hospital and then had been too busy in NICU to even try to deal with it.  From there, we’d had oxygen equipment for months (even after E had stopped needing oxygen, our doctors had us keep the equipment a bit longer just in case) and needed a place to put the apnea monitor.  All this meant that the room was beautifully arranged to fit the monitor and oxygen equipment, but not really optimally for living without them.  We’d recently gotten rid of both the oxygen compressor and the apnea monitor, but the room was, like the rest of the house, a mess.

To placate me, Arthur told me that I should let the rest of the house go for the time being and see if I could work up a way to make E’s room nice.  He’d help with as much as he could and also with the lifting/arranging of furniture.  We decided to make a little bit of room in our budget to get a few things to decorate the room as well.

One day, I found a neat collage frame at a store.  It held six photos, organized around a central photo.  It was a little more expensive than we wanted, but I couldn’t resist.  I bought it and eventually put a photo of E in the center with a picture of us, one of my parents, one of Arthur’s family, one of the twin cousins once they were born, and one of my brother and his girlfriend in the outside frames.  It’s one of my favorite parts of E’s room.

As E has learned to talk and recognize people, Arthur started explaining who the people were in the frames when he was getting E dressed in the mornings.  Or so I found out when E startled me one morning by pointing up at the picture of my brother and announcing, “Unca E-!”

It wasn’t that I minded at all, in fact, it was lovely and I am really glad that Arthur is teaching E who the people in the frames are to her.  It was more that I wasn’t expecting it and it took me off guard for a moment.  I treasured the moment and didn’t think about it again for awhile.

A few weeks ago, I got some photos from my mother that I asked her for and downloaded from her phone, a whole mishmash starting at the beginning of E’s life.  As I was going through them, I found one that made me stop and stare, one I hadn’t been entirely certain existed.  E was born about seven months before my brother died.  He saw her once in NICU and then once in September of 2015.  Only during that September visit did he get to hold her.  At the time, it didn’t seem extremely noteworthy.  I didn’t know if anyone had snapped a photo.

There it was, though.  E hurried over, took one look at the photo and went “Unca E-“.  She made me go back to the photo several times as I scrolled through the folder, even trying to use the touchscreen on my laptop to go back to look at it anytime I’d try to move forward.

It was beautiful and so, so d*mn sad at the same time.

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In Which A Break Turned Out To Be Longer Than I Anticipated

Content note: Pregnancy mentioned

I didn’t set out to take a writing hiatus, but thanks to, well, life, that’s exactly what happened.  Of course, once the hiatus starts, it becomes harder and harder to go back. Where do I even start?

It has, indeed, been a full couple of months.  School has been busy, so perhaps it’s not so much a true writing hiatus as a blogging hiatus as I’ve written a fair amount towards that overarching project of BSN work.  My daughter had a couple of minor surgeries that thankfully went well, but one of which required several all-day trips in a relatively short time period to see a specialist out of town.  Arthur and I both blanched at the horrible election results.  We’ve lived under Pence for the last four years and to say that we’re worried and chagrined would be a gross understatement.  My husband’s work got busy and I changed my job position as well.  As of December 31, I crossed 28 weeks and 5 days pregnant, making me – out of four pregnancies – the furthest along I’ve ever been.  An anatomy scan at 18 weeks showed no abnormalities and that the baby is a little girl.

In many ways, we’re transitioning into a relatively good place family-wise.  Out of the normal has been our default setting for so long – starting with infertility and progressing to miscarriage, job losses, a high-risk pregnancy, PPROM, preterm birth and my brother’s death – that it’s almost a novelty to sit back and just breathe for the first time in about four years.

Sometimes I almost forget that a lot of people in real life we come in contact with these days don’t know the story since we moved in the midst of it and then spent a year in quarantine to let E’s premature immune system develop.  By the time we came out of hibernation, E looked a lot less premature (small, but not abnormally so), didn’t have her wires from the monitor any more, we weren’t in the midst of infertility treatment and then had a welcome, spontaneous pregnancy.  Recently, we were at church, going over future plans for the congregation and I objected to one point that talked a lot about “families with children”.  Which of course, seemed odd given that we are “family with children”.

“What you don’t see,” I explained, “is that we almost didn’t have children.  We did several rounds of fertility treatments and then IVF and had miscarriages.  My water broke at 21 weeks and by almost any calculation of odds, E wasn’t going to survive.  By that time, we were financially tapped out, emotionally exhausted, and if E hadn’t lived, we wouldn’t have had the ability to keep trying or pursue adoption.  We would have been a family of two.”  It heartens me that in that group of people I was talking to, everyone was kind, respectful and interested in being inclusive of family structures outside of the nuclear.

Another moment occurred when we went down to witness my niece and nephew’s dedication ceremony.  As all the parents and adorably dressed babies walked out onto the stage, the pastor briefly talked about the ceremony and then gestured to a white rose placed in the front.  He explained that this was in honor of those who had lost children, struggled with infertility, and for whom this was not a joyous or easy occasion.  While communities – religious or otherwise – still have a long way to go towards true, full inclusion and integration of those who struggle with infertility, do not have children, or do not have the families they longed for, such a gesture was a welcome sign that perhaps someday those changes may come with work and determination.

At these moments, I found myself almost in tears both times.  Certain aspects of infertility are slipping into the past for me and yet, others are still so much present in my life.  It informs so much of how I view family, parenting, and life in general.

This Dream Stands Before Me

Content Note: Child, parenting

When we moved to the city, we weren’t in much of a position to begin exploring.  Fortunately, as spring finally made an appearance, we began remedying that situation.  We started by taking E to the botanical gardens for her first birthday.  I hadn’t visited the gardens in years, and while the outdoor gardens weren’t appealing on the cool, gray day, the indoor gardens were beautiful and blooming.

It wasn’t E’s first outing – we’d made a few forays to restaurants during quiet hours when we could keep her in her carrier away from germs – but this one was the first we’d really done with the intention of getting out with her and showing her sights.  I’m not sure if she was impressed or unnerved by the brightly colored foliage, fish pond, and waterfall, but she kept looking around and staring at everything.

Later that evening, we took some cookies and other goodies up to the childbirth center where I spent my time on hospital bedrest and the NICU.  Seeing all the nurses who had cared for us for so many months was fun and everyone oohed and ahhed over how big E had gotten. When we stepped into the busy NICU, leaving the treats at the desk, I realized E didn’t belong there anymore as I watched people rushing around.

We threw E a party that weekend, just inviting family, but with Arthur being the oldest of five, it still meant a fair number of people.  I made simple food: meatballs, sandwich spirals, spiced oyster crackers, a fruit plate, a vegetable spread, as well as a from-scratch chocolate cake.  We helped her open her gifts, E far more enamored with the colored paper and boxes they came in.

Taking the baby out just for fun, throwing a party, going to NICU just to visit instead of staying, marked a moment that I’d dreamed about during her whole NICU stay and even beyond.  Every day, I’d go to NICU, take stock of the wires and tubes, and visualize E as a healthy toddler.  Hope that there was a life beyond the NEC scares, the brady episodes, the oxygen, worry about RSV, and the monitors where we would no longer wonder if this was the day it would all come crashing down.  It kept me going through the months where we couldn’t get E to eat, the nights the home apnea monitor would go off several times, often due to loose leads but jolting us nonetheless.

All of a sudden, that child ceased to be simply a hope and stood in front of me in the flesh.  I smiled, realizing that no matter what other dreams were gone, this one, this deeply cherished one had somehow come true.

The Enemy of Finished

When I was in college, I had a piece of paper taped to the top of my computer monitor that read: “Perfection is an admirable goal, but it is the enemy of finished.” I’ve found, in the years since graduating college, that this is good advice for life, not just term papers.

One of the items on my checklist if I ever managed to get and stay pregnant was high quality professional photography. Starting with maternity photos near one of the nearby lakes in springtime, then we’d transition to adorable, sleepy newborn photos and wind up with lively “happy first birthday” photos. There was (and still is) a good chance we’re only going to get to do this once, and I planned to make the most of it. These photos were going to be gorgeous and pinterest-worthy.

Once my water broke at 21 weeks, maternity photos were out. I couldn’t stand for long periods without gushing amniotic fluid, and I was trying to keep E’s head from exerting pressure on my cervix to stall labor as long as possible. I have one photo of me noticeably pregnant, taken about 40 minutes before my c-section when I did something I’d been longing to do for weeks and took a short stroll around the maternity unit. Arthur stands beside me in scrubs and I look puffy, wearing a very fashionable hospital gown and non-skid socks. It’s precious to me because of what it represents, but it’s not quite what I had in mind originally.

Then, of course, E was in the NICU for eight weeks, then out for four days, then back in for another eleven day stay. She was covered in oxygen and monitor cords. She got cold easily, so undressing her and doing those cute, sleepy photos wasn’t an option. I have quite a lot of photos of her in NICU, but none of them are professional for obvious reasons.

Once E got out, we scheduled with a professional photographer who had extremely reasonable prices because she was still building her portfolio. The appointed day of our (outdoor) shoot, it rained. We had to reschedule. Arthur and I wound up having a conflict with the second appointment. The photographer had to cancel the third due to a family emergency. After that point, we realized it wasn’t going to work. I had a couple of cute outfits and a family cradle I really wanted photos of E in, and she was outgrowing them. It was already July. We asked Arthur’s dad – who is decent with a camera – to take a few shots.

We cleaned ourselves up, I put on make-up and a skirt, and we schlepped ourselves and all of E’s outfits about an hour to do the shoot. To make a long story short, it turned out that Arthur’s dad, who had been photographing some of the flowers at the park before we arrived, forgot to adjust the settings on the camera. All of the photos took on a distinct blue-green tint as the color saturation was way off. Even after playing around with editing for some time, I couldn’t get the color quite right. I get along well with my in-laws, but even when people get along well in any family there are going to be moments where we are less than happy with one another. This was one of those moments. I reminded myself that  as upset as I was this was not worth serious drama, took a deep breath and counted to ten.

Thanks to a long time spent on bed rest, the short duration of my pregnancy, and Arthur losing his job for several months in the middle (and of course, IVF), I knew we didn’t have the money to do the gorgeous, outdoor, artsy photo shoot I’d envisioned at that point. This, for what it’s worth, is not a complaint. We are darned fortunate that with everything that happened we didn’t take a far more catastrophic financial hit. We are doing okay, amazingly okay. But we definitely didn’t (and don’t) have the discretionary income to throw the several hundred dollars it costs in our area after the shoot that lined up with my vision of perfection. After the set of photos with Arthur’s dad didn’t work out, life got busy with doctor’s appointments and then my brother died. Photos fell off the priority list entirely.

This week, I was in a gently-used children’s store looking for an item and ran across the cutest little Christmas dress in E’s size. It was inexpensive, so I nabbed it and Arthur and I delighted over it when I showed it to him. The familiar refrain in my head started. I have to get a cute picture of E in this dress.

I thought about it a bit more. Yeah, I really do want to get a picture of E in this dress. I don’t have a picture printed out of her to show people when they ask. I don’t have a picture for my locker at work. I really want a decent photo of her – and maybe us with her too.

I knew finding a photographer with availability at all this time of year was going to be a challenge, let alone one within our price range. I did a few internet searches and finally landed on the portrait studio at the local mall. The prices were low, low enough to fit in our very limited budget, and they had plenty of availability. I set the appointment for this coming Monday evening.

The photos won’t be breath-taking. They won’t make Annie Leibovitz sigh in envy. They really won’t be pinterest-worthy (except maybe in a hipster, ironic sort of way).

At the same time, I’ll have pictures of E in that adorable dress. I’ll have a reasonably decent photo of the three of us I can put up on my work locker and send to family. I also know, a couple of years from now, I’ll look at that photo and smile. We’re lucky at this stage we can even get this photo taken for so many reasons.

It’s not perfect. But you know something? Perfection – and pinterest worthiness – are overrated.  Sometimes, things just need finished.